WOMEN WHO BLEED
SUSPECT BLEEDING SYMPTOMS?
BOTH BLEEDING DISORDERS + COLLAGEN DISORDERS CAN CAUSE THE SAME BLEEDING SYMPTOMS. WE HAVE GATHERED GREAT RESOURCES TO SELF-EDUCATE, DISCOVER + DISCUSS WITH YOUR DOCTOR IF YOU SUSPECT A BLEEDING DISORDER. IF IN DOUBT PLEASE DO NOT HESITATE TO CONTACT US DIRECTLY VIA E-MAIL.
1. Take the SELF-BAT Test
THANKS TO DR PAULA JAMES, YOU CAN COMPLETE ONLINE, PRINT + PRESENT TO YORU DOCTOR HERE.
PDF VERSION HERE.
2. Explore more on Women Who Bleed
EXPLORE OUR BLOG + RESOURCES ON YOUR TOP-RIGHT. LEARNING, SELF-ADVOCACY + WORKING WITH YOUR DOCTOR IS IMPORTANT.
3. Consider utilising the 'ISTH/CCS Bleeding Assessment Tool'
IT'S A STANDARDISED QUESTIONNAIRE + PROPOSAL FOR NEW BLEEDING DISORDERS, USEFUL FOR DOCTORS HERE.
4. Keep a Journal of your Menstrual Symptoms
MENSTRUAL SYMPTOMS: YOU CAN UTILISE THE "PBAC" TO ESTIMATE BLOOD LOSS, PRINT COPIES HERE.
ALTERNATIVELY USING A MENSTRUAL CUP IS ABSOLUTELY ACCURATE WITH MEASUREMENTS!
5. Pictures and Video records of your Symptoms are helpful
WOMEN FROM ALL OVER THE GLOBE FIND THIS HELPFUL FOR THEIR DOCTORS + AWARENESS. EXAMPLES HERE.
IT'S ALSO A GREAT WAY TO OBSERVE THE JOURNEY OF IMPROVING QUALITY OF LIFE.
6. Search the 'Global Treatment Centre Directory'
THE WORLD FEDERATION OF HEMOPHILIA HAVE US COVERED, REACH OUT + INTRODUCE YOURSELF OUT TO ONE HERE.
Disclaimer : We are passionate about sharing the experiences of women with bleeding disorders - their backgrounds with medical treatment, their life goals and how they achieve them, their dreams for the future of our community. While we are sharing our and others views and experiences of their lives with bleeding disorders, we are not giving out medical advice or seeking to treat anyone. We encourage all our readers and community to speak with their own medical team about their care, to advocate for themselves and to ask every question that comes to mind.
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