Resources

RESOURCES

Welcome to our Resource Library, yes this is used by health professionals as well as patients around the globe!
All the publications are listed by topic, if you have any questions or suggestions please E-mail us.

WOMEN WHO BLEED DOCUMENTS
Women Who Bleed MBAC & FAQ Sheet, v310320
Women Who Bleed Survey Report COMING SOON

FEMALE REPRODUCTIVE HEALTH

Contraception Deception: Open and Honest Discussion about Birth Control Between Your Holisitic Gynecologist & Eastern Medicine Doctor- by Dr Shawn Tissone & Dr Natalie Kringoudis
The Bright Girl Guide - by Demi Spaccavento GREAT FOR GIRLS AND TEENS
Beautiful You - by Dr Natalie Kringoudis
Period Repair Manual, Second Edition: Natural Treatment for Better Hormones and Better Periods - by Dr Lara Briden
Heavy Flow: Breaking the Curse of Menstruation - by Amanda Laird
Periods Gone Public: Taking A Stand For Menstrual Equity - by Jennifer Weiss-Wolf
Adore Your Cycle - by Claire Baker
The Pill: Are You Sure It’s for You? - by Jane Bennett
Taking Charge of Your Fertility - by Toni Weschler
Fertility Awareness Charting Journal - by Pen & Paper
First We Make The Beast Beautiful, A Story About Anxiety - by Sarah Wilson

FEMALE FOCUSED BLEEDING DISORDER
Let’s Talk Period: Women and Bleeding Disorders - by Dr Paula James, October 2017
"What Is Normal?" Part One, WWB Period Video Logs - by Women Who Bleed, 2017
'Women with Bleeding Disorders with Dr Robert Sidonio Jnr' Ask the Experts Episode 3 - by Blood Stream Media, May 2017
Excessive Bleeding in Women: Spotlight on Hemophilia Carriers - by Dr Michelle Scholzberg, July 2016
Menstrual Cycle - Cleveland Clinic, October 2017

NOT JUST PERIODS - OTHER BLEEDING DISORDER TOPICS
Women With Haemophilia - by Dr Dave Clarke, March 2017
Objective Diagnosis of Bleeds Using Ultrasound or Other Imagine - by Dr Annette von Drygalksi, July 2017
The Real Faces of Inhibitors: Person with Inhibitors - by Patient Zoe McGough, July 2016
Bleeding and Response To Treatment: How To Define A Bleed - by Patient David Page, July 2016
The Long-Term Psychological Management of Women and Girls with Inherited Bleeding Disorders - by N.F Dunn, 2011

COAGULATION CORNER - DISORDER SPECIFIC BY CATEGORY
Von Willebrand Disease
Von Willebrand Disease: Understanding the basics - by Dr Paula James, October 2017
Von Willebrand Disease - by P.James & A Goodeve, May 2011
Joint Bleeds in Von Willebrand Disease Patients Have Significant Impact on Quality of Life & Joint Integrity - K. Van Galen, 2015
Von Willebrand Disease: Diagnosis, Treatment & Life - by Blood Stream Media, May 2017
Emergency Care for Patients with Von Willebrand Disease
Von Willebrand Factor Variant Database
Erik Von Willebrand

Type 1
Von Willebrand Disease Type 1: A Diagnosis in Search of A Disease - by Dr J. Evan Sandler, March 2003
Type 1C (Clearance)
Upstream Mechanisms Causing Type 1C Von Willebrand Disease
Von Willebrand Type 1C (Clearance) Sequence Analysis
The common VWF single nucleotide variants c.2365A.G and c.2385T.C modify VWF biosynthesis and clearance - July 2018
Type 2A
Von Willebrand Disease, Type Two; VWD2
Von Willebrand Disease Genetic Subtyping − Type 2 and Platelet Type
Type 2B
Von Willebrand Disease, Type Two; VWD2
Protein kinase C signaling dysfunction in von Willebrand disease (p.V1316M) type 2B platelets
Von Willebrand Disease Genetic Subtyping − Type 2 and Platelet Type
Type 2CB (Collagen Binding)
Von Willebrand Disease, Type Two; VWD2
Two Novel Mutations Causing Defective Collagen Binding in A3 Domain of Von Willebrand Disease
Type 2M (Vicenza)
Von Willebrand Disease, Type Two; VWD2
Von Willebrand Disease Genetic Subtyping − Type 2 and Platelet Type
Type 2N (Normandy)
Interaction of FVIII & VWF and Identification of Type 2N Von Willebrand Disease - E. Favaloro, October 2010
Type 2N VWD; Clinical Manifestations, pathophysiology, laboratory, diagnosis and molecular biology - C. Mazurier, 2001
Clinical Phenotype in Genetically Confirmed VWD Type 2N reflects a Haemophilia Phenotype - M. Van Meegeren, 2015
Evaluation of Automated Screening Assay of VWD Type 2N - SL. Taylor, 2002
A Common Ancestor over 10,000 years old for Patients with R854Q Type 2N VWD in Italy - A. Casonato, 2012
Identifying Carriers of Type 2N Von Willebrand Disease: Procedures & Significance - A. Casonato, 2007
Type 2P (Propeptide-vWF)
An Arch760Cys Mutation In he Sequence of vWF Propeptide Cleavage Site Is Responsible for New vWD Variant - A. Casonato, 2003
Type 2U (Unclassified)
Type 3
Inhibitors to Von Willebrand Factor
Pseudo-Type Von Willebrand Disease
Von Willebrand Disease Genetic Subtyping − Type 2 and Platelet Type
Bernard-Soulier Syndrome
Bernard-Soulier Syndrome An Inherited Bleeding Disorder
Acquired Von Willebrand Disease
How I Treat Acquired Von Willebrand Syndrome

Haemophilia

Haemophilia A (Factor VIII Deficiency)
Excessive Bleeding in Women: Spotlight on Hemophilia Carriers - by Dr Michelle Scholzberg, July 2016
Haemophilia B (Factor IX Deficiency)
Excessive Bleeding in Women: Spotlight on Hemophilia Carriers - by Dr Michelle Scholzberg, July 2016
Haemophilia C (Plasma Thromboplastin/Factor XI Deficiency)
Acquired Haemophilia

Rare Bleeding Disorders
'Rare Coagulopathies' Nurses Guide to Bleeding Disorders - by Jim Munn, 2013

Acquired Platelet Disorder
Alpha 2-Antiplasmin Deficiency
Alport Syndrome
Delta Storage Pool Deficiency
Factor V Deficiency
Factor VI Deficiency
Fibrinogen (Factor I) Deficiency
Fibrin Stabilising Factor (Factor XIII) Deficiency
Glanzmann Thrombasthenia Ina/IIb
Gray Platelet Syndrome
Hangman's Disease (Factor XII Deficiency)
May-Hegglin Anomaly
Plasminogen Activator Inhibitor Deficiency Type 1
Plasminogen Deficiency
Platelet Dysfunction Disorder
Prothrombin (Factor II) Deficiency
Scott Syndrome
Stuart-Prower (Factor X) Deficiency
Tissue Factor/Thromboplastin (Factor III) Deficiency
Wiskott-Aldrtch Syndrome

Collagen Vascular Disorders

Ehlers-Danlos Syndrome
Ehlers-Danlos Variant Database
'Rare Coagulopathies' Nurses Guide to Bleeding Disorders (including Ehlers-Danlos Syndrome) - by Jim Munn, 2013
Suspected Collagen Disorders in the Bleeding Disorder Clinic: A case-control study - by S.C. Jackson, October 2012
Desmopressin Responsiveness in Children with Ehlers-Danlos Syndrome Associated Bleeding Symptoms - by Dr Bryce A. Kerlin , November 2008
Bleeding and bruising in patients with Ehlers-Danlos syndrome and other collagen vascular disorders - by Dr A De Paepe , October 2004
What Are The Ehlers-Danlos Syndromes?
So You Think You Might Have EDS?
Diagnostic Criteria Check List for Hypermobile type Ehlers-Danlos Syndrome
Vascular Type Ehlers-Danlos Syndrome Associated With Platelet Dysfunction & Low Vitamin D Serum Concentration - by Dr Albert Busch, August 2016

Disclaimer : We are passionate about sharing the experiences of women with bleeding disorders - their backgrounds with medical treatment, their life goals and how they achieve them, their dreams for the future of our community. While we are sharing our and others views and experiences of their lives with bleeding disorders, we are not giving out medical advice or seeking to treat anyone. We encourage all our readers and community to speak with their own medical team about their care, to advocate for themselves and to ask every question that comes to mind.