WOMEN WHO BLEED
THE CALL FOR A PATIENT-LEAD PLATFORM
Women Who Bleed was created by Chloe and Jenna (My Missing Factor), who met in 2015 after connecting on Facebook over a shared diagnosis of Von Willebrand Disease, and a shared history of not having all the information at our fingertips. Out of that first interaction a friendship was born, as well as a passion for sharing our stories, breaking taboos, seeking out every possible answer and being part of an international patient community.
We started this community to continue sharing the realities of living with a bleeding disorder as a woman - diagnosed or undiagnosed, treated, inappropriately treated or not treated at all, rare, common, or with multiple conditions, as well as any new research, community based activities and events and tools to help you in thriving with your diagnosis. Seeing the WHD 2017 theme as 'Hear Their Voices', a spotlight for women in the community inspired us to launch this site on 17 April!
At its heart, this website and community is about you - our goal is to help patients just like us stay informed and have the skills to create your best life. As we continue to fill this site with everything we wish we’d had in our adventure with bleeding disorders so far, please take a look around and consider doing one or all of the following:
- Sharing your story with us
- Following us over on Facebook & watch our live Q&A on 28th November
- Participate in our WWB Survey
- Letting us know what you’d love to see, or what gap in information needs to be filled for the community firstname.lastname@example.org
We can’t wait to share more with you soon.
Chloe & Jenna, April 2017
Disclaimer : We are passionate about sharing the experiences of women with bleeding disorders - their backgrounds with medical treatment, their life goals and how they achieve them, their dreams for the future of our community. While we are sharing our and others views and experiences of their lives with bleeding disorders, we are not giving out medical advice or seeking to treat anyone. We encourage all our readers and community to speak with their own medical team about their care, to advocate for themselves and to ask every question that comes to mind.
© COPYRIGHT 2017. ALL RIGHTS RESERVED.