WOMEN WHO BLEED
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THE CALL FOR A PATIENT-LEAD PLATFORM

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Women Who Bleed was created by Chloe and Jenna (My Missing Factor), who met in 2015 after connecting on Facebook over a shared diagnosis of Von Willebrand Disease, and a shared history of not having all the information at our fingertips. Out of that first interaction a friendship was born,  as well as a passion for sharing our stories, breaking taboos, seeking out every possible answer and being part of an international patient community.

We started this community to continue sharing the realities of living with a bleeding disorder as a woman - diagnosed or undiagnosed, treated, inappropriately treated or not treated at all, rare, common, or with multiple conditions, as well as any new research, community based activities and events and tools to help you in thriving with your diagnosis. Seeing the WHD 2017 theme as 'Hear Their Voices', a spotlight for women in the community inspired us to launch this site on 17 April!

At its heart, this website and community is about you - our goal is to help patients just like us stay informed and have the skills to create your best life. As we continue to fill this site with everything we wish we’d had in our adventure with bleeding disorders so far, please take a look around and consider doing one or all of the following:


- Sharing your story with us
- Following us over on Facebook & watch our live Q&A on 28th November

- Participate in our WWB Survey
- Letting us know what you’d love to see, or what gap in information needs to be filled for the community womenwhobleed@gmail.com

We can’t wait to share more with you soon.
Chloe & Jenna, April 2017
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​Jenna Lovell Co-Founder 
VON WILLEBRAND DISEASE TYPE 1 MODERATE
GENERALISED HYPERMOBILITY SPECTRUM DISORDER

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Long before the collective demands of females arose Jenna was her own kind of inspiration; she has been involved in community advocacy at every level, including the WFH's Youth Leadership Advisory Committee, and has also been sharing her story and advocating through her site, My Missing Factor.  Her inquisitive and fearless approach in challenging issues and her incredible source of knowledge & experiences has inspired and guided many of the global advocates today.  She teamed up with Chloe launching the Women Who Bleed online platform on World Haemophilia Day 2017, and was featured alongside Chloe in the media. 
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Jenna runs her own business as a Content Writer & Editor, and will be the driving force behind the Booth's content. She loves hiking in her home state's many national parks, as well as hunkering down on Sunday evenings with a cup of tea, some chocolate and a muted phone to catch up on Doctor Who.

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Chloe Christos Co-Founder
VON WILLEBRAND DISEASE TYPE 2N
CLASSICAL TYPE EHLERS-DANLOS SYNDROME


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Chloe’s creative background as an internationally renown fashion stylist, no-nonsense and fiercely energetic approach has been an enormous asset to the community to date. She began as the Media Chair & Australian Ambassador for the very first Women’s Booth in 2016.  

She is the global face of Von Willebrand Disease and Females with Bleeding Disorders following her personal story which went viral in the media on World Haemophilia Day 2016, following coverage by the Australian Broadcasting Corporation.  

She further continued to serve the community by uniting with Jenna to launch Women Who Bleed on World Haemophilia Day 2017 with the respective theme of ‘Hear Their Voices’ dedicated to females affected by bleeding disorders. Outside of the community, Chloe is mum to two adorable dachshunds who are her favourite companions.

Disclaimer : We are passionate about sharing the experiences of women with bleeding disorders - their backgrounds with medical treatment, their life goals and how they achieve them, their dreams for the future of our community. While we are sharing our and others views and experiences of their lives with bleeding disorders, we are not giving out medical advice or seeking to treat anyone. We encourage all our readers and community to speak with their own medical team about their care, to advocate for themselves and to ask every question that comes to mind.
© COPYRIGHT 2017. ALL RIGHTS RESERVED.
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